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Cameron's story

 

Cameron was born in 2000 with a severe heart murmur. We were sent to a cardiologist and upon seeing the echo we were told he may not live past 1. The thickening of the muscle around the left was so thick it was putting incredible strain on the heart. We visited the cardiologist once a week as they prepared him for a transplant and we're referred to a geneticist. While testing went on to prepare for the transplant 5 months of genetic testing ensued. At 5 months old a muscle biopsy was performed. One month later we were notified that he had mitochondrial disease. At 8 months he had to have surgery to correct a deformity of the genital area. At 9 months we had the elders at our church last hands on him and pray. At his next cardiology appointment he was 90% better. From 12 months to 4 years he took a heart medication that tasted so bad we had to force it on him but we feared for his life. Then he was allowed to go off of the medicine as the heart had remained 90% better. He has muscle weakness, mental retardation, chronic constipation and Fett deformities. Recently Cameron had surgery to correct an eye that went the wrong way due to muscle problems in the eye. He is doing well. He is the sweetest, most loving child and we count our blessings he is doing as well as he is.